Epilepsy Durham Region
I confess, COVID-19 is crushing us, so many of our vulnerable folks need us desperately. I just attended a survey review by the Ontario NFP Network who reports dire stats with regards to our sector. I’m watching our sector being decimated by complete loss of funding.
Epilepsy Durham Region (EDR) is an innovative, progressive charitable organization dedicated to fostering a safe and healthy community by enhancing and supporting the well-being of adults, children, youth, and families affected by epilepsy. As a registered non-profit, EDR provides tailored support to strengthen clients’ ability to manage the physical, psychological, and social effects of epilepsy, with extensive expertise in system navigation, advocacy, and mental health concerns.
Epilepsy Quick Facts:
- 1 in 100 people have epilepsy; of those 1 in 1000 will lose their life to a seizure, or 1 in 150 if seizures are uncontrolled
- When access to appropriate care is available, people with epilepsy are 51% less likely to die as a result of a seizure – EDR’s clinic allows people to access specialized care locally
COVID-19 has changed the face of normal, particularly those living with a chronic illness. Currently, it has impacted how individuals receive life-saving medications, and how they can access both critical and primary care.
Epilepsy Durham Region, like many charities, has been impacted significantly by the current pandemic; we are volunteer and fundraising event driven, and we receive neither government or United Way funding to support the programs utilized by so many. We have lost all sources of our revenue, and not unlike so many others, we have had no income since the state of emergency has been declared. Our expenses have remained the same, the request for help from our community has increased, and we have not reduced our staff hours nor laid off our staff. While this crisis has compounding effects on our ability to continue to offer service, EDR is balancing how to best provide remote service to our clients while also aggressively working towards sustaining operation.
If you are considering being a donor to our agency, please know that your kindness is helping to maintain a viable business model. If this is a new introduction to EDR, please consider donating to ensure we can continue to help families in desperate need by contributing to one of the many programs that help to keep a family whole. Please visit: https://bit.ly/2wQp9rq
Remember, your support helps to impact the lives of:
Aydin – https://bit.ly/2VPH75F
Ava – https://bit.ly/2yxyrJv
Abi – https://bit.ly/2xOLR3x
…and so many more
Thank you for taking the time to read through this and for all that you and the 100 Women APW do to make a positive impact in our community. More than ever, sharing our struggles and celebrating our successes is so important for all us.
Dianne McKenzie, CEO
Epilepsy Durham Region
310 Byron Street South Unit 3
Whitby, ON L1N 4P8 | 905-922-5809